It snowed again! Our fourth snowfall this season. That's a lot for us. The schools closed today, and they've already called off for tomorrow too. I really don't like to drive in the snow. I'm such a baby. I even don't like to be in the car when someone else is driving in the snow. Anyway, all of this snow is making me have a little bit of cabin fever. It's not as if I go out all of the time, I just like to know I have that option. And, this weather is taking that option away from me.
Last night Tim and I went out to dinner. We ended up having a nice time, but I felt bad at first. Yesterday I did quite a bit of housework. By the time Tim got home and I got cleaned up to go out, I was feeling pretty weak. I had taken my dose of Mestinon about three hours earlier, so it really wasn't time for another dose. I had a little bit of that old feeling I used to get. I was short of breath, weak and very fatigued. I ended up taking 15mg more of Mestinon and that, along with resting seemed to help. I knew we were going to go out so I probably should have taken it easy yesterday. Grrrrr!!!! It's so hard to know how to live sometime. I don't want to just not do anything, but I don't want to over do things. If I do over do it, my body will be forced to do nothing for a while.
I'm going to use this blog to sort out my thoughts about what I need to talk to Dr. S about. Here it goes:
1. Talk about my dose of Mestinon.....can I take more if I'm feeling bad? Take more doses?
2. Ask him about my breathing difficulties. Should I see a Pulmonologist?
3. Ask him if he would talk to Dr. F. Maybe they could coordinate my care?
4. Ask him about exercise
5. Would pt/ot help?
That's all I can think of for now.
I'm super tired. I think I'll read a bit then go to sleep.