I lived this life for nearly a decade. It's a horrible, horrible way to live. There's something to be said about the strong ones who don't give up. Sadly, funds and/or referrals may run out. When this happens, it's a matter of finding resources to help keep up the fight. There are advocacy groups for our suspected illness who may be able to lend a hand. There are government programs for those who are undiagnosed. There are patient advocates at insurance companies. Online message boards and Facebook groups are a great resource for those caught up in the medical maze. It's sad that when we are at our lowest is when we have to fight our hardest. In my case, I was getting sicker and sicker over time. I had a husband and children who needed me. Giving up wasn't an option. Giving up isn't in my nature either. I'm lucky enough to be going through this a second time. I'm being sarcastic, of course. I can't say I'm thankful for all that I went through to get the EDS diagnosis, but it did teach me a few things. I know how to advocate for myself. I know how to research doctors, tests, medications, and treatments. I know to believe in myself and to never give up. If you are searching for a diagnosis, don't give up either. Keep on fighting.
Here's a good article I read about those who are living with an undiagnosed illness. I hope you find it helpful. http://www.huffingtonpost.com/deborah-j-cornwall/still-undiagnosed-three-p_b_5837528.html
"Never, never, never give up" -Winston Churchill