Wednesday, April 29, 2015

I'm baaack.....

We are in full on wedding mode here. The wedding is three weeks from Saturday! Of course, I have what I call "Mother of the bride brain". My mind is consumed with things I need to do and things I need to remember to write down so I don't forget to do them and things I need to tell Elizabeth, the bride, to do. Then, there is all of the shopping, meetings, emails and phone calls. Oh my! And, the internet shopping, too. Which, while isn't nearly as exhausting as hauling myself all over town, has proven to be just as expensive! I'm so glad we thought to plant that money tree out back when we moved in a few years ago. And, oh, there's the other stuff going on, too. Like everyday life stuff. Cooking, cleaning, laundry, taking care of the dog, husband and one adult child still at home. Tending to myself has somehow gotten lost in all of the insanity. So, yes, I'm paying for it dearly. The pain, weakness and overall just feeling like crap has increased immensely. If I'm not careful, I won't be able to function by the time the wedding gets here.

I'm working on a plan for taking care of me. I'm handing over all of the meal prep to Katie (daughter still at home). She doesn't know it yet, but I'm going to do it. I promise. I hope you all don't hear her cries of protest. Seriously, I'm hopeful that she'll willingly help. She's pretty busy though with working and her maid of honor duties (Friday night she's painting wood pallet signs with her sister, the bride! I might have to post pictures). Laundry duties have improved quite a bit for me as the soon to be Mrs has been doing her own laundry and, her fiances, too. Katie has also been doing hers, although not nearly as frequently as you'd think she'd need to. Am I the only one who thinks three weeks is a long time to go between laundry days? As far as the other housework goes, I'm at an advantage now because when we have company, I can point out the the dining room is the "wedding workshop". Candy jars are being decorated for the candy bar, boxes full of decorations for the wedding and reception are stored there and basically anything that has to do with the wedding is in that room. People understand this much better than they would other household messiness. I figure if I can let the sweeping, vacuuming and dusting go for a week or two, I'll be able to finally get some rest.

Lately, mostly out of shear exhaustion, I've been enjoying listening to podcasts. You can literally find podcasts on everything. There are podcasts on science, books, genealogy, health, decorating, etc. Here's a link to my Pinterest podcast board, which has many of the ones I enjoy or think I might enjoy: https://www.pinterest.com/zebramom23/podcasts/ I love to learn and podcasts are one way I can continue to do that. Of course, some of them are just entertainment, but that's good, too. I also enjoy watching Ted Talks. http://www.ted.com/ I think I've talked about them here before. Being the over achiever that I am, I try to make the most out of the times that I'm too sick to get out of bed. Of course, there are times I'm so bad off that I'll I can do is sleep, or try to sleep.

In medical news, there's never a dull moment. Yesterday, when I was out shopping, I got a call from my eye doctor. She called with results from my genetic Macular Degeneration test. She ordered the test when my eyes showed signs of developing the disease. Plus, my birth mother has Macular Degeneration. The test showed I have five genetic mutations for the disease. That puts me at an increased risk for developing the disease. I have to start on eye vitamins, increase green, leafy vegetables in my diet, and be checked more frequently. She's going to send me a copy of the results so I'll have more idea what's going on. I asked if my result was a common one and she said no, that 9 out of 10 times they come back with no mutations. So, once again, I'm a freak of nature! I have an eye appointment with a retinal specialist in June. I have retinal nerve fiber layer thinning, in addition to the two or three other eye issues I have.

In June, I have my follow up with my mitochondrial disease specialist, Dr Kendall. Hopefully, the results from the whole exome sequencing will be in. I haven't started the supplements she told me about because I really wanted to see what the testing showed, but I'm rethinking that. As sick as I've been, I think I need to try something.

Well, I need to go pretend to be productive. Thanks for reading!

Shari

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